Through My Mothers Eyes ...... Vayden's Story: An Honor to Vayden and a Wonderful Non Profit

Thursday, August 12, 2010

An Honor to Vayden and a Wonderful Non Profit

In late July, a local news station contacted me requesting I do a story about Vayden and Now I Lay Me Down to Sleep. I LOVE the organization and everything they do and I was ready to help them in their quest to spread the word about infant loss and support the cause to give families lasting memories during such a tragic time.

The news segment aired today and they did a wonderful job and I am very pleased. I'm so happy that Vayden's memory lives on even 1 year later. Thank you to the staff at FOX News 25 and above all thank you to all the volunteers of NILMDTS.

(You can view the news segment by clicking the photo of Van, myself and Vayden or the hyperlink above that says FOX News 25 )

5 comments:

AnonymousAugust 12, 2010 at 7:49 AM
Stephanie,
Just watched the news clip. You are just so strong. It's amazing how quickly the tears come when ever I read/watch something you have done. You are AMAZING....

Carla
Mom to Angel Jody Michael Terian
www.carlajoe.vox.com
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kacyAugust 12, 2010 at 8:55 AM
Stephanie, I was watching channel 25 when I saw a quick picture of you and excitedly looked at my husband. I know her, I read her blog. You did an awesome job. I excitedly told him you were expecting a baby again. I wish you all the best. Take care.

Kacy
Tecumseh, OK
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CarolineAugust 14, 2010 at 9:52 PM
How beautiful and such a strong lady and family. I keep you close to my heart always.

{{HUGS}}
Caroline
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UnknownAugust 15, 2010 at 4:53 AM
How wonderful!! I was able to be part of a newspaper article for NILMDTS. It comes out Sept 10. I felt it was an honor as well!
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HollyAugust 19, 2010 at 5:13 PM
Absolutely fabulous. You rock.
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What is a Lower Urinary Tract Obstruction (LUTO)?

Fetal lower urinary tract obstruction (LUTO) is a rare condition that is caused by a blockage of fetal urination. Because the baby cannot empty the bladder, the baby’s bladder subsequently becomes very large and inflated. Also, because the amniotic fluid is essentially composed of the baby’s urine beyond the middle of the second trimester, the bag of waters dries up. A cascade of secondary effects result in significant morbidity and/or mortality for the baby. This includes problems to the urinary collection system (hydronephrosis) and kidneys (renal dysplasia) attributed to the backpressure from the urinary blockage. Underdevelopment of the lungs (pulmonary hypoplasia) develops from the lack of amniotic fluid during a critical time of the pregnancy.
The cause of fetal LUTO is varied. The most common cause in male fetuses is posterior urethral valves (membrane blocks the flow of urine from the bladder). Oligohydramnios (low amniotic fluid volume defined as the maximum vertical pocket less that or equal to 2.0 centimeters) may then develop, and is associated with a worse prognosis. In females the most common cause is urethral atresia (a body orifice or passage in the body is abnormally closed or absent). Other causes of fetal LUTO include but are not limited to obstructive ureterocele (area between the tube that carries urine from the kidneys to the bladder), urethral stricture (abnormal narrowing of the urethra) or agenesis (absence of), persistent cloaca (a defect in which the rectum, vagina, and urinary tract are fused together into a single common channel), and megalourethra (congenital dilation of the urethra). The ultrasound findings of many of these conditions are similar, and it is often difficult to differentiate the cause of the urinary obstruction until after delivery.
Because there are different causes of LUTO, the prognosis can be expected to be different depending on the individual diagnosis. However, a major component that dictates perinatal outcome is the secondary complications of the obstruction (renal dysplasia and pulmonary hypoplasia). To prevent these complications, several methods have been developed to bypass the blockage of urine while the baby is still in the womb, with the hope that the backpressure on the kidneys can be averted and the amniotic fluid volume may replenish to allow for more normal lung development.
Frequency
Significant lower urinary tract obstruction can be found in 1 in 500 pregnancies.

http://www.fetalhope.org/fetal-lower-urinary-tract-obstruction-luto.html

Just a few of the Wonderful Comments ppl have left

you are VERY welcome...i know everything will work out.if anyone is strong enough its you. i would have done anything. and Vashon was wonderful! miracles happen all the time and remember things happen so you can learn from them. You know how stubborn Vashon was when you were pregnant with him and look at him now.Don't stress...i have faith!!! its gonna work out! you know i would do anything for you!i love you! see you tomorrowtext me if you need anything!
Posted by kim. on Wednesday, January 21, 2009 -

I am sure everything will be ok. We are praying for ya'll. I am sure everything will work because that is the only way Zaire and Zahara is going out. With Vashon and ???(Stewart give that lil man his own name)....Plus, if they try anything funny with my girls' I get can you and Stewart to whooping them. On the real. Keep praying, I am sure the Lord's will will be done. Call us if ya'll need anything. Love ya'll....Quince family.....

I Just want to tell you...that you are so inspiring to me...as a young first time mom...I can look up to strong women like you!! Your beautiful and strong faith in our Lord and savior only strengthens my relationship and walk with God. I hope you know you have touched my life with your passion. I am praying for you, your family and your precious lo TIFFYB20

Your words, as hard as I'm sure they are for you to write, are truly inspirational. You are so beautiful and strong and amazing. I continue to pray for you, your son and your family. May God bless all of you. LYNDSAYWVU
I agree, you are an incredibly inspirational woman. I will continue to pray for you and your family. God works miracles. That little guy just may be one. We've missed you too. Remember we are all here when you need us. MALIBUALR

I can't describe how I feel when I read this. On one hand I am truly inspired at how well you are handling this and what a faithful person you are and on the other hand my heart is just breaking. Thanks for keeping us posted. I think about you all the time. BABYSU

I am crying reading your post but that doesnt mean I have lost faith. The reasons and the will of God will be made clear to you and it will take all of your energy,strength, understanding, love, and support, to get through this but I have no doubt you will, no doubt at all. Deep meditative prayer will guide to what you will need to do whats best for your baby and yourself and your family. BABYPHAT2008

I just have to say again that you are an amazing woman BrownSugar. Anybody who knows you is very lucky to have you in their lives :) ISLANDMUM

I applaud your strength and admire your courage. You are in essence the quintessential example of what a mother truly is. I am sending you love and strength of spirit. SKIP23

I am in tears for you. There are just no words. Vayden is a very special boy and so lucky to be loved so tremendously. You have every right to feel the way you do. Nobody can know what it's like to have to make such a difficult decision until it happens to them but you continue to show a tremendous amount of strength and love for your Vayden. I don't even know you but my heart aches so badly for you. You and Vayden are and will continue to be in my thoughts and prayers. DMOMMY2BE

Im sorry that you have to go through this...nothing we tell you can make you feel better and I definitely understand why u don't wanna hear the "GOD stuff" I wouldn't wanna hear it either especially because I've never understood the fact that he put the ability in us to have children then takes them away so easily..I'm sorry I usually never pray but I will tonight for you. WNDRLNDCHICK

I agree with everyone you are very strong momma, hold this little one tight while you have him. I will be praying for you & for strength.. I saw this and thought I would share incase you havn't seen it.. ***An angel opened the book of life and wrote down your baby's birth. Then she closed the book and whispered: "too beautiful for earth". ~author unknown *** I know this is a sad sad thing.. you have every right to be angry.. Please remember we love you, and you can vent or cry or just talk whenever you need us.. we WILL be here for you.. always. MOMMACLARK

MommaClark, that quote you found is truly the best thing I've heard so far aside from my mother telling me that Vayden is going to be up there taken care of by a wonderful woman who was never able to have children. But it brought me to happy tears and I will stick with the for the remainder of the pregnancy and following letting him go home BROWNSUGAR07 aka Stephanee (me)

Through My Mothers Eyes ...... Vayden's Story

Thursday, August 12, 2010

An Honor to Vayden and a Wonderful Non Profit

5 comments:

A Mothers Love Will Never Die

Grab My Button

The Stewart Family 2009

About Me

31 weeks Waiting with Vayden

Blog Archive

What is a Lower Urinary Tract Obstruction (LUTO)?

Vayden with his parents

Other Families Affected By LUTO or PUV

Helpful Webisties

Followers

You are safe with God

Just a few of the Wonderful Comments ppl have left

Other Blogs I Follow

Through My Mothers Eyes ...... Vayden's Story

Thursday, August 12, 2010

An Honor to Vayden and a Wonderful Non Profit

5 comments:

A Mothers Love Will Never Die

Grab My Button

The Stewart Family 2009

About Me

31 weeks Waiting with Vayden

Blog Archive

What is a Lower Urinary Tract Obstruction (LUTO)?

Vayden with his parents

Other Families Affected By LUTO or PUV

Helpful Webisties

Followers

You are safe with God

Just a few of the Wonderful Comments ppl have left

Other Blogs I Follow

Subscribe To Vayden's Blog